Vertigo, Mold, and MARCoNS
I haven't been around for a while because at the end of September I got hit with a sudden and nasty bout of vertigo...went to the ER...they put me on steroids...they didn't help much...I saw an ENT who did an Epley maneuver...didn't help much...I went back again and they did another Epley and I almost fell in the bathroom on my way out because I turned my head the wrong way and the room started spinning violently. So they took me back in and did a BBQ roll maneuver...didn't help much.
I've learned to not turn my head too much or bend over, but the vertigo is still there but not overly debilitating. The first ENT diagnosed me with "allergies" even though I have tested negative for all normal allergens. I also have fluid in my right mastoid cells according to the hospital MRI.
So I waited about a month - I did take a round of antibiotics in the meantime, which seemed to help a little - and then I had a virtual consultation with a different ENT who thinks I may be having vestibular migraines along with BPPV (ear crystals in the wrong place). But she ordered a full comprehensive balance testing and ear checkup to make sure nothing else is going on. It took weeks for that appointment to be scheduled, which is in about 10 days from now.
Meanwhile, my integrative doctor had me get nasal swab testing done from Microbiology DX. It came up positive for MARCoNS or multiple antibiotic resistant staph (moderate amount) with a strong biofilm 3+ and a small amount of aspergillus niger (mold). My integrative doctor wanted to see what my ENT said, so I sent her the labs and she hasn't gotten back to me all week about it.
The mold is a concern. I have had an odd chronic nervous system issue where I get paresthesias, twitching, and internal tremors especially when I sleep. I've been trying to cure this for four years now after an acute infection started it.
I will note that when I lived in Austin, Texas (when I first got sick four years ago) my apartment had a recurring water leak in the ceiling that was never fully fixed. I thought I might have been exposed to mold, and got mycotoxin (mold toxin) testing done after I moved out.
I was positive for ochratoxin A and gliotoxin. However, the levels had dropped when I retested and so I thought maybe I was done being exposed and moved on to exploring other possible reasons why I might still be having symptoms.
The MARCoNS makes sense, as some antibiotics have helped up to a point...but then there's this low-grade sinusitis I've had, ever since I can remember, that nothing has seemed to kick...though to be honest, I was never diligent about treating it since I thought for a while it was allergies.
In the meantime, I started self-administering Xylitol nasal spray alternating with colloidal silver hydrosol. It seems to be sloowwwwly improving but lingering.
I'm also going to get a spinal tap since my nerves went crazy when this hit (I have ongoing neurological irritation) but it's been postponed until the vertigo calms down more and I've had my ears checked...which is frustrating since maybe the spinal tap would show something.
I have a friend who also recently got vertigo (on the other side of the country) and he says it seems to be going around. It's possible I had covid, but when I finally got a PCR test it was negative, and then they screwed up and didn't get my requested antibodies test done the last time I was at Kaiser getting labs done. So who knows.
All I know is, I want my head to feel normal again. :-(
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